Caring for a loved one with dementia can be hard. This #WorldAlzheimersMonth, learn how CMS is helping support caregivers as they care for loved ones with dementia through the Guiding an Improved Dementia Experience (GUIDE) Model. GUIDE connects families with a dedicated care navigator and respite support, so caregivers can also take care of themselves. Watch a new video featuring CMS Administrator Oz and hospice nurse Manal M.: go.cms.gov/GUIDE-video “I’ve seen firsthand, both as a nurse and in my own life, what a difference it makes when families have the kind of support we’re providing through the GUIDE model.” – Manal M., nurse and GUIDE team member Learn more at go.cms.gov/GUIDE or call 1-800-MEDICARE to see if GUIDE is available in your area.

If you get diagnosed with dementia while enrolled in Medicare Advantage, you face a tough choice: stay in MA (and deal with prior authorizations, network restrictions, and no access to GUIDE) or switch to FFS (to get network freedom and GUIDE care management, but risk massive out-of-pocket costs because you can't buy a DC policy). Ultimately, forcing families into this dilemma is merely a bandage on a broken system, not a real fix—it effectively asks people to gamble with their health future long before they ever know what care they will need. Why not keep funding FFS rather than push MA.

Recent federal legislation significantly impacts Medicaid and Medicare funding, with profound consequences for disabled individuals living with Alzheimer’s and related dementias. The passage of the Budget Reconciliation Act / One Big Beautiful Bill Act triggers an estimated $1 trillion in federal Medicaid cuts over the next decade, alongside roughly $500 billion in future Medicare cuts. Because individuals with dementia are highly reliant on these programs for specialized care, these budget reductions present immediate risks to their health, independence, and long-term care stability. ⚠️ Direct Impacts on Dementia and Disability Care Individuals living with advanced dementia are uniquely vulnerable to these cuts because Medicaid is the primary federal program that covers long-term skilled nursing home stays and Home- and Community-Based Services (HCBS). 1. Loss of Home Care & Independent Living Services -Federal cuts are severely restricting state-level funding for "optional" Medicaid benefits. • Home- and Community-Based Services (HCBS)—which allow early-to-mid-stage dementia patients to receive care at home—are the primary target for states.

Important work by CMS for #WorldAlzheimersMonth. The GUIDE Model is a real step forward — pairing families with a dedicated care navigator and respite support so caregivers can care for themselves too. We see the impact across Home Health, Hospice, Physician Practices and other providers we support at C&M OneSource Healthcare: when dementia care is coordinated and caregivers are supported, outcomes improve and burnout drops. Thank you to Administrator Oz, Manal M. and the entire GUIDE team for putting caregivers at the center of the model.

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GUIDE is still under-known among families and referral partners I talk with. World Alzheimer’s Month is a good moment to push structured dementia support, not just another pamphlet. Connecting caregivers to real care navigation is the unlock.

And yet the Trump administration has worked to slash care supports for older adults:“In addition to slashing Medicaid, which covers the cost of long-term care for indigent seniors, the bill delays minimum staffing requirements at nursing homes, opening the way for a potentially steep drop in patient care across the board.” https://justiceinaging.org/newsroom/nursing-home-crisis-trumps-one-big-beautiful-bill-slashes-medicaid-delays-staffing-rules-and-threatens-care-for-millions-of-seniors/

Thank you Manal Monegro, DNP, RN for your leadership on such an important initiative that is near and dear to many caregivers!

This is such an important topic, and love to see Manal Monegro, DNP, RN shining a light of the great work of caregivers! 🫶🏾#caregiversneedsupport #CMMI #betteroutcomes

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